The current phase in the Healthy Parent Carers programme of research aims to ensure the health promotion programme for parents of disabled children is evaluated appropriately, and that all parent carers are able to access and engage with the programme.
- How can we best measure if the programme works or not?
- How can we ensure that a diverse group of parent carers can access and engage with the programme?
We have completed two studies which involved interviewing parent carers about their views and experiences.
In Study 1, we asked parent carers about how they think their health and wellbeing should be measured in research. We discussed with them some of the topics which are commonly associated with mental wellbeing in general populations. We also asked whether these topics captured what is most important for them, and whether we should also explore topics which are more specific to the lives of parent carers. You can read the results of the research here.
In Study 2, we explored how to ensure all parent carers feel able to engage with the Healthy Parent Carers programme. We interviewed parent carers from diverse backgrounds (e.g. sex, ethnicity). We asked about advertising to different communities, especially those that may engage less with public health and research. We wanted to ensure the programme is accessible, and tailored when necessary, so that anyone who might benefit from the programme will feel able to get involved. You can read the results of the study here. We also produced a Plain Language Summary, a video and a top tips sheet.
Public involvement
Parent carers have been involved in all stages supported by a dedicated peer coordinator. Thank you to all those who gave their time to support the research.
