The current phase in the Healthy Parent Carers programme of research aims to ensure the health promotion programme for parents of disabled children is evaluated appropriately, and that all parent carers are able to access and engage with the programme.
- How can we best measure if the programme works or not?
- How can we ensure that a diverse group of parent carers can access and engage with the programme?
Development work plan
Two studies will involve interviewing parent carers about their views and experiences.
In Study 1, we will ask parent carers about how they think their health and wellbeing should be measured in research. We will show them a questionnaire that is commonly used to measure mental wellbeing in general populations. We will ask whether this questionnaire is appropriate and capturing what they think is most important for them, or whether we should use questions more specific to the lives of parent carers.
In Study 2, we will explore how to ensure all parent carers feel able to engage with the Healthy Parent Carers programme. We will interview parent carers from diverse backgrounds (e.g. sex, ethnicity). We will ask about advertising to different communities, especially those that may engage less with public health and research. We want to ensure the programme is accessible, and tailored when necessary, so that anyone who might benefit from the programme will feel able to get involved.
Public involvement
Parent carers have and will be involved in all stages supported by a dedicated peer coordinator.
